Keep me company as I travel thru my journey facing breast cancer again.

Why would anyone want to read about someone else's problem when you have plenty of your own? Maybe one day a loved one, a friend, or you will be diagnosed with breast cancer. My blog might offer insite into cancer resources, thoughts, questions to ask, or guidance in helping you deal with this disease. These are my experiences and suggestions. Every breast cancer is different. If you are touched by breast cancer, be sure to consult your Dr. for direction in treatment.

I equate my blog to the emergency evacuation instruction the flight attendants do before you take off on an airplane. Nobody pays attention to them but when your plane is about to crash you think, "sh*t, why didn't I pay more attention to them? Which color cord do I pull first again?" We have so many things going on in our lives that one more thing to dwell on that doesn't apply to us right now may not be important but when it does, we wish we would have paid attention.

My blog is something you might read a couple times or maybe follow. Hopefully you gain some knowledge about breast cancer, in particular, Invasive Lobular Carcinoma (ILC). It is the 2nd most common type of invasive breast cancer however it only accounts for approx. 10% of all invasive breast cancers. It is the silent breast cancer. It is generally not detected with a mammo but rather an ultrasound. Invasive Lobular Carcinoma (ILC) is what I have been diagnosed with. My suggestion to every woman who is of mammo age insist on an ultrasound with your mammos.
UPDATE 3/2011
I have had my bilaterial mastectomy and I am recovering. ILC is a sneaky cancer as I said above. My various Dr.'s here and at UCSF confirmed the size of my tumor should be between 2.5cm-3.5cm with possibilty but not most likely, 7cm. After my surgery, my tumor was confirmed to be 11cm. My Dr.'s are very knowledgeable and are on top of things. This is simply the truth about ILC. I had mammos every 6 months, ultra sounds, and MRI's. With all of these, it was not picked up until 1/2011. The good news, if you can call it that, only 1 sentinel node out of 2 has micromastic findings and 5 aux. nodes were negative.

Be sure to start my adventure from the blog history on the right. I have tried to bold points to make it easier to extract the important information. If there is anything you get out of this blog, refer to my Dr.'s listed below if you know someone who has been diagnosed with breast cancer in the East Bay. These Dr.'s; Dr. Gottlieb, Dr. Wotowic, and Dr. Sherman are my 3 musketeers....all for 1 and 1 for all!

May 21, 2011

2nd chemo and I'm doing really well, which is scary!

So here I am on Saturday morning. Two weeks ago I was not functioning. I actually feel good, not great but I'm functioning. I started my meds much earlier and I am a fanatic about taking the meds on time, no lapsing. I think it's working. It's not like I'm running around the house doing laundry but I'm in bed resting watching tv and in an hour might go for a walk. I know it was about 10am 2 weeks ago when I went to my pilates class and then things went further down hill after that class. I'm hoping it just stays the same as to how I'm feeling.
So quick over view. Remember what I've done worked for me but you should consult your Dr. Tuesday night: stool softener.
Wednesday am: stool softener, drops, juice with vitamin E, zofran, mucinex, Tylenol, claritan d, mouthwash. Drink lots of water/fluids.
Wednesday pm: stool softener, drops, juice with vitamin E, zofran, mucinex, tylenol, mouthwash through out the day, ativan, added q-tip with neosporin to use for lining of the nose (suggested by another chemo patient to prevent bloody noses farther down the treatments.)
Thursday-day of chemo. Follow time restrictions for all meds and continue with all
Friday- day after. Got neulasta shot. Continued all listed meds within their time restrictions. Might increase the mucinex, ears are clogging up leading to ear ache.
So at 9:15am I feel good. Much better then 2 weeks ago. Scary! I can feel I'm shaky and I don't plan on driving anywhere today.
Last night I shaved my head or I should say my 18 yr old daughter shaved my head. By yesterday afternoon strands of hair were coming out. For me, better to be pro-active. I bought a shirt that says "I'm too sexy for my hair" I wore that shirt and Alex my daughter wore her's " save second base, support breast cancer research". I saw on her face book, she wrote my mom and I are a team. Took our picture together. Wow, no hair really shows off the wrinkles, bummer. Too bad chemo cant erase them also!
Feels weird having it so short but it still doesn't really bother me yet. It will be the in public that will rattle me. So for now, I think I'm good. Lots of cute hats to be discovered!

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